Michael's Story
Thank you so much for giving us such a beautiful and peaceful place to stay on our journey! Our son Michael was born with a rare disease called Barth Syndrome. When we got Michael as foster parents he was 4 months old. Four days after he came into our care we found out he was in heart failure. For three years medication controlled his heart failure until it didn’t… At 3 ½ years old he had to have an external heart pump and be placed on the transplant unit. We were welcomed i